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Here's to 2012: to hope and happy happenings

If 2011 has taught me anything, it is that I am indeed a weeble. I began the year with hope in my heart and have ended it just the same, but the stuff that happened in between is what has made me certain of my weeble status.

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An open heart just has to get broken now and again

My life is nothing short of beautiful. I wake up every morning filled with hope and wonderment. No two days are ever the same and I have the good fortune to be able to do the things I feel passionate about. Of course, there are the day-to-day challenges posed by living with two impairments, but I have adapted and only ever really feel disabled by ignorance. On balance, I am a happy girl, but I have always asserted that there is no yin without yang, no joy without pain, no happiness without suffering, and this has certainly been true of late.

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Hope, sight loss, grief and the remarkable resilience of humankind

Yesterday, we made our pilgrimage to Moorfields Eye Hospital for my annual MOT: this involves having my eyes photographed, having drops that sting like crazy put into them and then having bright lights flashed in their direction at different intervals, only to be told that my eyesight is getting worse. The retinitis pigmentosa has now completely invaded my macula, which makes sense of the gazillion point font I need to read text, my whopping 1/60 acuity is now hanging on for dear life and the double vision as well as the psychedelic photopsy are now permanent features, but I am not troubled. In fact, on receipt of all of this news, I was so non-plussed that it was as if someone had told me that I was perfectly fine.

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